National Resources for Family Caregivers
Family caregivers can use this handy listing of national organizations to help locate information and support on topics and issues important to them.
For state-specific information, please see the Family Caregiver Services by State map and guide.
Caregiver/Older Adults
Family Caregiver Alliance – https:// www.caregiver.org
AARP Resources for Caregivers – https://www.aarp.org/caregiving/
American Seniors Housing Association (ASHA) – https://www.whereyoulivematters.org/
ARCH National Respite Network – https://archrespite.org/respitelocator
Benefits Checkup – https://benefitscheckup.org/
Caregiver Action Network – https://www.caregiveraction.org/
CCAL-Advancing Person-Centered Living – https://ccal.org/about-ccal/
Diverse Elders Coalition – https://diverseelders.org/
Eldercare Locator – Area Agencies on Aging (AAAs) – https://eldercare.acl.gov/
LeadingAge – https://leadingage.org/
Leeza’s Place – http://www.leezasplace.org/
Lotsa Helping Hands – https://lotsahelpinghands.com/
Meals on Wheels Association of America (MOWAA) – https://www.mealsonwheelsamerica.org/find-meals
National Adult Day Services Association (NADSA) – https://www.nadsa.org/for-caregivers/consumers/
National Alliance for Caregiving (NAC) – https://www.caregiving.org/
National Center on Elder Abuse – https://ncea.acl.gov/
National Center on Senior Transportation – https://www.nadtc.org/aging-and-disability-transportation-overview/
National Long-Term Care Ombudsman Resource Center – https://ltcombudsman.org/
Need Help Paying Bills – https://www.needhelppayingbills.com/
NeedyMeds – http://www.needymeds.org
Paying for Senior Care – https://www.payingforseniorcare.com/
Powerful Tools for Caregivers – https://www.powerfultoolsforcaregivers.org/
Quality Improvement Organization (QIO) (help for people with Medicare who has quality of care concerns and complaints)– https://qioprogram.org/locate-your-qio
Rosalynn Carter Institute for Caregiving (RCI) – http://www.rosalynncarter.org/home/
Shepherd’s Centers of America – https://www.shepherdcenters.org/
The National Consumer Voice for Quality Long-Term Care (formerly NCCNHR) – https://theconsumervoice.org/
Well Spouse Association – https://wellspouse.org/
Faith Based Organizations
Catholic Charities – https://www.catholiccharitiesusa.org/
Lutheran Services in America – https://lutheranservices.org/older-adults/
National Volunteer Caregiving Network (Faith In Action) – https://nvcnetwork.org/wp/
Network of Jewish Human Service Agencies – https://www.networkjhsa.org/agency-locator/
Government Resources
ClinicalTrials.gov – https://clinicaltrials.gov/
Disability.gov – https://www.dol.gov/agencies/odep/topics
Healthfinder.gov – https://health.gov/myhealthfinder
LongTermCare.gov – https://acl.gov/ltc
Medicare.gov – Nursing Home Compare – https://www.medicare.gov/care-compare/?providerType=NursingHome&redirect=true
MedlinePlus – Go Local – https://medlineplus.gov/
Social Security Disability Insurance (SSDI) – https://www.ssa.gov/benefits/disability/
Supplemental Security Income (SSI) – https://www.ssa.gov/benefits/ssi/
Medicare Rights Center – https://www.medicarerights.org/
US Dept of Labor – Family and Medical Leave – https://www.dol.gov/agencies/whd/fmla
Health Organizations
ALS Association – https://www.als.org/
Alzheimer’s Association – https://www.alz.org/
Alzheimer’s Disease Education and Referral (ADEAR) Center – Alzheimer’s Disease Clinical Trials Database – http://www.nia.nih.gov/Alzheimers
Alzheimer’s Foundation of America – https://alzfdn.org/
Alzheimer Research Forum – http://www.alzforum.org
American Brain Tumor Association – https://www.abta.org/
American Cancer Society – https://www.cancer.org/
American Chronic Pain Association – https://www.acpanow.com/
American Diabetes Association – https://www.diabetes.org/
American Heart Association – https://www.heart.org/
American Kidney Fund – https://www.kidneyfund.org/
American Pain Foundation – https://uspainfoundation.org/
American Parkinson’s Disease Association (APDA) – https://www.apdaparkinson.org/
American Stroke Association – https://www.stroke.org/
Arthritis Foundation – https://www.arthritis.org/
Association for Frontotemporal Dementias (AFTD) – https://www.theaftd.org/
Brain Injury Association of America – https://www.biausa.org/
BIAA Caregiver Information Center – https://www.biausa.org/brain-injury/community/caregiver-information-center
Brain Talk Communities – https://www.braintalkcommunities.org/
BrainLine – https://www.brainline.org/
Cancer Support Community – https://www.cancersupportcommunity.org/
Defeat Diabetes Foundation (Support Groups) – https://defeatdiabetes.org/get-healthy/diabetes-support-groups/
Healing Exchange BRAIN TRUST (Support Groups) – https://braintrust.org/
Huntington’s Disease Society of America – https://hdsa.org/
Hydrocephalus Association – https://www.hydroassoc.org/
Leukemia and Lymphoma Society – https://www.lls.org/
Lewy Body Dementia Association, Inc. (LBDA) – https://www.lbda.org/
MedHelp.org – https://www.medhelp.org/
Multiple Sclerosis Foundation – https://msfocus.org/
National Brain Tumor Foundation – https://www.braintumorfoundation.org/
National Brain Tumor Society – https://braintumor.org/
National Diabetes Information Clearinghouse – https://www.niddk.nih.gov/health-information/diabetes
National Kidney Foundation – https://www.kidney.org/
National Multiple Sclerosis Society – https://www.nationalmssociety.org/
Needy Meds – https://www.needymeds.org/
Parkinson’s Disease Foundation – https://www.parkinson.org/
Patient Advocate Foundation – https://www.patientadvocate.org/
Legal Assistance
American Bar Association (ABA) – Commission on Law and Aging – https://www.americanbar.org/groups/law_aging/
LawHelp.org – https://www.lawhelp.org/
Legal Services Corporation (LSC) ( Legal aid) – https://www.lsc.gov/
National Academy of Elder Law Attorneys (NAELA) – https://www.naela.org/findlawyer
National Center on Law and Elder Rights – https://ncler.acl.gov/
WorkLife Law (WLL) – https://worklifelaw.org/get-help/what-is-frd/
Palliative/Hospice
Aging with Dignity (End of Life Planning) – https://agingwithdignity.org/
Hospice Foundation of America – https://hospicefoundation.org/
National Association for Home Care and Hospice (NAHC) – https://mynahc.nahc.org/directories/agency-locator?reload=timezone
Rare Diseases/Disorders
National Organization for Rare Disorders (NORD) – https://rarediseases.org/
Genetic and Rare Diseases Information Center – https://rarediseases.info.nih.gov/
Veterans Resources
National Association of County Veteran Service Officers (NACVSO) – https://www.nacvso.org/
U.S. Department of Veterans Affairs (VA) and Caregiver Hotline for Post – 9/11 – https://www.va.gov/family-member-benefits/comprehensive-assistance-for-family-caregivers/
VA – Directory of Veterans Service Organizations – https://www.va.gov/vso/