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Family Caregiver Services by State

I am New to Caregiving Where Do I Start?

ARCH National Respite Network

http://www.respitelocator.org

Online Respite Locator is a service to help families and professionals locate respite services in their community from a database of nearly 3,000 members.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

919-490-5577

Association on Aging in New York

http://www.agingny.org/

Offices for the Aging (also known as Area Agencies on Aging or AAAs) offer aging services, including:
– Information and Assistance
– Care Management
– Nutrition Services (i.e., Meals on Wheels)
– Legal Assistance
– Services for family caregivers through the Family Caregiver Support Program (FCSP)

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

For a directory list of the Offices for the Aging/AAAs visit: http://www.agingny.org/AboutUs/AAADirectory.aspx or call the Association on Aging in New York: (518) 449-7080

The Eldercare Locator is a nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Elder Locator links those who need assistance with state and local agencies on aging, as well as community-based organizations that serve older adults and their caregivers with services such as meals, home care, transportation, caregiver training and education, or a well-deserved break from caregiving responsibilities

Care Recipient Eligibility

Older adults and caregivers.

Caregiver Eligibility

Older adults and caregivers.

Contact Information

1-800-677-1116

Family Caregiver Alliance (FCA)

https://www.caregiver.org

FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.

CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey. Register online or call us toll-free at 800.445.8106.

www.caregiver.org/connecting-caregivers/fca-carenav/

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 445-8106 Available weekdays 9:00am - 5:00pm (Pacific Time)

New York Family Caregiver Support Program (NFCSP)

https://aging.ny.gov/national-family-caregiver-support-program

The National Family Caregiver Support Program (NFCSP) provides supports that assist family and informal caregivers to care for their loved ones at home for as long as possible. Assistance provided includes case management, counseling, support groups & training, and respite & supplemental services.

The National Family Caregiver Support Program is administered by the NYSOFA through the Area Agencies on Aging (AAAs). View more Caregiver Resources when caring for a loved one.

Care Recipient Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Caregiver Eligibility

- Adults age 18 and older caring for someone who meets care receiver eligibility Special Populations: - Adults age 55 or older who are caring for anyone (that is not their child) over 18 years old with developmental disabilities - Grandparents or other relatives age 55 or older caring for children (age 18 and under)

Contact Information

1-844-697-6321

NY Connects provides one stop access to free, objective, comprehensive information and assistance on long term services and supports for people of all ages or with any type of disability.

Contact Information

800-342-9871

Can I Get Help to Pay for Caregiving?

Consumer Directed Personal Assistance Association of New York State (CDPAANYS)

https://cdpaanys.org/

The Consumer Directed Personal Assistance Association of New York State supports consumer directed personal assistance providers and recipients in all counties of New York State, offering supportive services, including, but not limited to: advocacy, systems change, and the promotion of consumer control and self determination.

Consumer Directed Personal Assistance allows Medicaid recipients in need of personal care, home health and nursing services to recruit, hire, train, supervise and terminate their own personal assistants.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

518-813-9537

Expanded In-home Services for the Elderly (EISEP)

https://aging.ny.gov/expanded-home-services-elderly-eisep

The Expanded In-home Services for the Elderly Program (EISEP) provides frail older adults with access to a well-planned, coordinated package of in-home and other supportive services designed to support and supplement informal care.

In 2011, EISEP regulations were amended to provide a consumer-directed option. Consumer direction under EISEP is a person-centered planning approach that empowers an older adult by enabling him/her (or his/her representative) to hire, train, and oversee their in-home services worker.

Care Recipient Eligibility

Anyone 

Caregiver Eligibility

Anyone 

Contact Information

New York State Office for the Aging: 1-844-697-6321 NY Connects to get help from a locally trained specialist - 1 (800) 342-9871

The cost of that care varies based on care setting, geographic location of care and level of care required, among other things. The Genworth’s Cost of Care Survey tool can be used by you and your family to calculate the estimated cost of long term care in your city or State.

Information about eligibility and requirements for home and community-based services by state.

Government Benefits and General Information

ACCESS NYC

https://access.nyc.gov/

ACCESS NYC is a free service that helps you find out if you may qualify for over 30 City, State and Federal benefit programs such as Medicaid, Food Stamps or help with utility bills. It is mobile friendly, available in seven languages, including English, Spanish, Chinese, Russian, Korean, Arabic, and Haitian Creole, and is formatted for text-to-speech screen readers.
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Use ACCESS NYC to find out more about different health and human services benefits that may be right for you or a loved one. ACCESS NYC contains all the information you will need to apply for benefits such as how to apply, where to go, and what documents to bring.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Benefits.gov

http://www.benefits.gov/

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Benefits.gov – New York

https://www.benefits.gov/categories

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. Eight years after its initial launch, GovBenefits.gov underwent a major redesign and became Benefits.gov. However, the program’s mission remains the same: reduce the expense and difficulty of interacting with the government while increasing citizen access to government benefit information.

Care Recipient Eligibility

N/A

Caregiver Eligibility

N/A

Contact Information

Benefits.gov is unable to respond to specific scenarios or provide personalized advice. A number of Other Resources and Frequently Asked Questions are available to help answer any questions you may have about government programs, benefits, and services.

For additional government information, you may call USA.gov's National Contact Center at 1-800-FED-INFO (1-800-333-4636), Monday through Friday, 8 a.m. to 8 p.m. Eastern Time, to speak to an information specialist.

Consumer Directed Personal Assistance Association of New York State (CDPAANYS)

https://cdpaanys.org/

The Consumer Directed Personal Assistance Association of New York State supports consumer directed personal assistance providers and recipients in all counties of New York State, offering supportive services, including, but not limited to: advocacy, systems change, and the promotion of consumer control and self determination.

Consumer Directed Personal Assistance allows Medicaid recipients in need of personal care, home health and nursing services to recruit, hire, train, supervise and terminate their own personal assistants.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

518-813-9537

Expanded In-home Services for the Elderly (EISEP)

https://aging.ny.gov/expanded-home-services-elderly-eisep

The Expanded In-home Services for the Elderly Program (EISEP) provides frail older adults with access to a well-planned, coordinated package of in-home and other supportive services designed to support and supplement informal care.

In 2011, EISEP regulations were amended to provide a consumer-directed option. Consumer direction under EISEP is a person-centered planning approach that empowers an older adult by enabling him/her (or his/her representative) to hire, train, and oversee their in-home services worker.

Care Recipient Eligibility

Anyone 

Caregiver Eligibility

Anyone 

Contact Information

New York State Office for the Aging: 1-844-697-6321 NY Connects to get help from a locally trained specialist - 1 (800) 342-9871

Information about eligibility and requirements for home and community-based services by state.

National Resource Center on Native American Aging (NRCNAA)

https://www.nrcnaa.org/

The NRCNAA serves the elderly Native American population of the U.S. The NRCAA assists in developing community-based solutions through education, training, and technical assistance to improve the quality of life and delivery of related support services to the Native aging population.

Through the Native Elder Service Locator, you can use the interactive map to locate tribal elderly services in your state.

Contact Information

(800) 896-7628

New York County-Specific Veterans Service Officer Contacts (VSO)

https://veterans.ny.gov/content/hamilton-county-veterans-service-agency-location-1

Contact Information

(888) 838-7697

New York Health Insurance Counseling and Advocacy Program (HICAP)

http://www.aging.ny.gov/HealthBenefits/

Assists individuals and families with eligibility questions and problems related to Medicare, including prescription drug coverage under Medicare Part D, managed care, long-term care planning, health insurance and other health care issues.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

HICAP Hotline: (800) 701-0501

Medicaid is a health insurance for people with limited income and resources. It pays for a variety of medical services, including in-home care or nursing home care, depending on eligibility.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(800) 541-2831 In NYC you can also call the Human Resources Administration: (877) 472 8411

Government program available to people with disabilities and frail older adults who need some assistance with the activities of everyday life. Offers in-home care services such as meal preparation and bathing.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

To be connected to your local AAA within New York, call: (518) 449-7080 OR Senior Citizen Helpline (800) 342 9871 Monday-Friday 8:00am-4:00pm *Assistance also available in Spanish

New York State Caregiving and Respite Coalition (NYSCRC)

http://www.nyscrc.org/

Coalition of organizations that promote services and support for family caregivers. Coalition website serves as a resource for caregivers and those who work with caregivers providing online respite provider lists by county and information on respite helpline.

Caregiver Eligibility

Anyone caring for someone who meets care receiver eligibility criteria

Contact Information

585-287-6393 To identify services in your area call NY Connects: (800) 342-9871

New York State Division of Veterans’ Affairs (VA)

http://www.veterans.ny.gov/

Provides aged or disabled veterans with rehabilitative, residential and medical care and services. The VA also helps veterans and their families to present claims for veterans’ benefits to the federal government and offers veterans low-cost loans to acquire farms and homes.

Care Recipient Eligibility

Family members of a veteran

Caregiver Eligibility

Family members of a veteran

Contact Information

(888) VETS NYS (888-838-7697)

New York State Partnership for Long-Term Care

http://www.nyspltc.org/

Partnership between private insurance companies and Medicaid, provides long term care insurance as part of Medicaid coverage.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(866) 950-7526

PlanAheadNY Long Term Care Insurance Helpline

http://www.planaheadny.com/

Government program offers education on long-term care and counseling on long-term care insurance options and providers.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(866) 950-PLAN (866 950-7526)

Senior Citizen Helpline

http://www.aging.ny.gov/

Offers information and referrals for aging and caregiver services.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(800) 342 9871 Monday-Friday 8:00am-4:00pm *Assistance also available in Spanish

Can I Get Help While Living In My Home?

Adult Day Health Care Council

https://www.leadingageny.org/adhcc/

New York’s Adult Day Health Care Council serves its 133 programs throughout NYS and its caregivers and registrants. It is a critical resource for caregivers who want their loved ones to remain in the home.

Contact Information

518-867-8383, ext. 141

Home Care Association of New York State (HCA)

http://www.hca-nys.org/

Provides information on in-home care and an online search tool for consumers to locate service providers which are HCA members.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(518) 426-8764

Hospice and Palliative Care Association of New York State

http://www.hpcanys.org

Provides information about end-of-life care. Its online search tool allows the user to search for member hospice and palliative care programs for individuals who have
advanced illness or have been considered terminally ill by a physician.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Within New York State, call: (800) 860-9808 Outside of New York State, call: (518) 446-1483

LeadingAge New York (formerly New York Association of Homes and Services for the Aging – NYAHSA)

https://www.leadingageny.org/

NYAHSA’s website offers a search tool which allows the user to search for long term care providers and services by county, zip code and provider’s name. Long term care services include:
– In-home care
– Nursing homes
– Assisted living facilities
– Adult day facilities
– Senior housing

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(518) 449-2707

Government program assists individuals with disabilities and older adults, medically eligible for placement into a nursing home, remain in their own homes by providing a coordinated plan for medical, nursing and rehabilitative care. Services include:
– Medical services
– Care management by registered nurse
– Home delivered or congregate meals
– Home modifications
– Respiratory therapy
– Respite
– Adult day care
– Transportation

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

Access the program through you local Department of Social Services. See the list of the Departments of Social Services here: https://www.health.ny.gov/health_care/medicaid/ldss.htm

New York County-Specific Veterans Service Officer Contacts (VSO)

https://veterans.ny.gov/content/hamilton-county-veterans-service-agency-location-1

Contact Information

(888) 838-7697

Government program available to people with disabilities and frail older adults who need some assistance with the activities of everyday life. Offers in-home care services such as meal preparation and bathing.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

To be connected to your local AAA within New York, call: (518) 449-7080 OR Senior Citizen Helpline (800) 342 9871 Monday-Friday 8:00am-4:00pm *Assistance also available in Spanish

New York State Association of Health Care Providers, Inc. (HCP)

http://www.nyshcp.org/

HCP represents home and community-based care providers across New York State through advocacy, information and education. HCP’s Provider members include Licensed Home Care Service Agencies (LHCSAs), Certified Home Health Agencies (CHHAs), Hospices, and health related organizations (HROs), as well as Associate members that provide products and services specifically developed for home care providers.

Provides information on home care programs and services, and an online search tool for consumers to locate home care service providers which are HCP members.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(518) 463-1118

New York State Department of Health

https://health.ny.gov/

The New York State Department of Health is responsible for inspecting and licensing of health care facilities and long-term care providers, such as adult care facilities/assisted living, home care and hospice, nursing homes and other health care facilities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Adult Day Care and Assisted Living Complaints: (866) 893-6772 Hospice Complaints: (800) 628-5972 Nursing Home Complaints: (888) 201-4563

New York State Independent Living Council, Inc. (NYSILC)

http://www.nysilc.org/

A network of non-profit, non-residential, community-based centers, run and controlled by persons with disabilities that offer:
– Information and Referral
– Peer counseling
– Care Management
– Independent living skills training
– Individual and systems change advocacy
– Benefits counseling
– Employment readiness training
– Housing referrals
– Assistive technology services
– Legal aid

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(877) 397-4126 (Within New York State) (518) 427-1060 (Outside New York State)

Can I Get Help with Residential Care (Assisted Living, Nursing Home, Hospice?)

Government program helps individuals in need of nursing level of care delay placement in a nursing facility by helping to pay for support services in an assisted living environment. Services include:
– Personal care
– Room and board
– Physical therapy
– Medical supplies and equipment
– Adult day care
– Care management by registered nurse

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

To be connected to your local AAA within New York, call: (518) 449-7080 OR Senior Citizen Helpline (800) 342 9871 Monday-Friday 8:00am-4:00pm *Assistance also available in Spanish

Hospice and Palliative Care Association of New York State

http://www.hpcanys.org

Provides information about end-of-life care. Its online search tool allows the user to search for member hospice and palliative care programs for individuals who have
advanced illness or have been considered terminally ill by a physician.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Within New York State, call: (800) 860-9808 Outside of New York State, call: (518) 446-1483

LeadingAge New York (formerly New York Association of Homes and Services for the Aging – NYAHSA)

https://www.leadingageny.org/

NYAHSA’s website offers a search tool which allows the user to search for long term care providers and services by county, zip code and provider’s name. Long term care services include:
– In-home care
– Nursing homes
– Assisted living facilities
– Adult day facilities
– Senior housing

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(518) 449-2707

New York State Department of Health

https://health.ny.gov/

The New York State Department of Health is responsible for inspecting and licensing of health care facilities and long-term care providers, such as adult care facilities/assisted living, home care and hospice, nursing homes and other health care facilities.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

Adult Day Care and Assisted Living Complaints: (866) 893-6772 Hospice Complaints: (800) 628-5972 Nursing Home Complaints: (888) 201-4563

New York State Health Facilities Association (NYSHFA)

https://www.nyshfa-nyscal.org/

Offers online information on nursing homes and hospice care. Online search tool allows the user to locate service providers, members of NYSHFA.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(518) 462-4800

New York State Partnership for Long-Term Care

http://www.nyspltc.org/

Partnership between private insurance companies and Medicaid, provides long term care insurance as part of Medicaid coverage.

Care Recipient Eligibility

___

Caregiver Eligibility

___

Contact Information

(866) 950-7526

PlanAheadNY Long Term Care Insurance Helpline

http://www.planaheadny.com/

Government program offers education on long-term care and counseling on long-term care insurance options and providers.

Care Recipient Eligibility

Anyone

Caregiver Eligibility

Anyone

Contact Information

(866) 950-PLAN (866 950-7526)

Caregiver Policies and Data

Caregiving Across the States: 50 State Profiles – New York

https://www.caregiver.org/uploads/2023/08/New-York-2023-1-1.pdf